Friday, November 30, 2012

Diabetes - Scrambled Brain Issues

I have this nagging suspicion that having diabetes and extra large glucose molecules floating around my vascular system may in all likelihood have a potential impact on my BRAIN. Why you ask.........

Well, for one there are definite links to dementia and vascular disease. It is also becoming obvious to me that mood and diabetes are intricately linked.  I mean I not only notice this in my own actions and moods, but now in those of my two other D kids under my direct care. 

Of course the obsessive part of me, or my brain, asks questions like; how early does the small vessel damage in the brain occur? Is it inevitable? And am I turning into this monster as I go about my day-to-day activities? Or, is it simply normal responses to everyday stresses causing my temper to flare, and my words to fly, often inappropriately, and almost always too quick for me to control.

Then there are my Kids. The ones with Diabetes of course. They are notoriously more temperamental then the other siblings. My teen is, lets just say, unbearable some days, and linked to poorly controlled sugar levels, sleep patterns, and the typical hormonal fluctuations she is unfortunately afflicted with solely based on her pubescent phase of life. Undoubtedly annoying to me nonetheless.

Back to my brain. I admit I have insurmountable domestic responsibilities. We moved again, and have just recently started a new school year at differemt schools. Sounds a lot like typical life. Changes, the ebb and flow, the usual. But is my mood, behavior, and my ability to handle stress some how worse and more difficult to manage because my small brain  (not my size, he he) vessels are being ravaged over time by the occasional elevated sugar levels?  So really, has diabetes and high sugar levels "Scrambled My Brain"

Anyone else out there in the D-sphere find that concentration, temperament, memory is effected from having diabetes for many years or at the very least when your diabetes is completely messed up.

I wrote this post a few months ago, and have since found out my thyroid was really, really low, and since taking synthroid, my memory and concentration has improved, but I still pose the above question.

Wednesday, November 28, 2012

Turning a Woe into a Win

I know my titles kill me too!

So after I wrote the last post I was feeling the need to pay a visit to the school to touch base post traumatic letter writing warfare.

I feel it is imperative for Rowan`s sake to have a cohesive team with good morale. I went into the office and said hello, and proceeded to ask to speak to the principal.

I am fully aware of office politics and am 99% certain everyone in the school office was somewhat aware of the little quarrel from a week ago. Oh well.

I  was permitted to enter Mr P`s  (Name is changed) office. I shook his hand and asked him how things were going now with Rowan. I then said that I wanted to make peace as I now felt that Rowan`s team is strained. He denied feeling the same way, and assured me that everything was fine on their end.

I tried to convey empathy for his position and his need to take a formal stance when he feels that a students safety is paramount, but I also encouraged him to please call me next time with anything, small to prevent a cascade of letter writing warfare that invariably leaves all parties feeling segregated and awkward.

We shook hands and decided to move forward in a positive direction. On the way out I bumped in to the TA in charge of Rowan`s care. ``Awkward`` But nevertheless, I asked her if ``our team`` was still good and intact. Sometimes I think I am far to sensitive but I feel it is important to maintain good relations with those responsible for keeping my baby safe. I thanked her for learning about diabetes and taking good care of Rowan. She said ``Go Team Rowan``

I hope all is well.

Trev 

Monday, November 26, 2012

School Woes

I need to share our recent experience with our daughters new school.
But first a little back ground info.

We recently moved locations, in the same town, but far enough to consider changing schools. After deep thought we decided to change schools.

As anyone knows change is hard enough, new people, new schedules, but we thought what the heck it`ll work out just fine. Wrong.....

I went to the school to do a mini presentation on diabetes management 101 to all the school officials involved directly and indirectly in Rowan`s care. All went smooth, or so I thought.

School started, routines were becoming entrenched, and more comfortable each day. Communication was multiple times daily via text, cell phone and the occasional email.

Until the dreaded formal letter.

To my surprise we were delivered a letter from the Principal CC`d to his boss pointing out three issues that they failed to call me to discuss or text me during our daily interactions. My blood instantly boiled.

WTF. They create a paper trail as opposed to a simple phone call.

Okay, I know you are asking, what were the issues. Well they were 1. Her glucose levels were fluctuating - duh, that is because we have her on a crap insulin to accomidate school life, the dreaded NPH.....2. They need ample supplies to care for her diabetes, well we once forgot to send the right glucometer, at which time they called me and I immediately dropped another off, and 3.  We are not easy to get a hold of - that one I simply disputed by showing the principal my cell phone and all the daily texts from the teachers aide.

We felt like we were being attacked from our so called team members.  I guess the purpose of this post is a bit selfish, yes I am venting to the DOC.

We refuted the letter by writing our own to the principal, hand delivered and discussed with him, even though it went in one ear and out the other. We also CC`d the letter to his boss, following suit with his paper trailing methods.

I am still, sitting here shaking my head thinking, what the hell is wrong with picking up the phone and dealing with people face to face directly.

Trev